Consumer Research Participation

VMIAC embraces, enables, empowers, & emboldens the lived experience community

ARE YOU A CONSUMER & THINKING ABOUT PARTICIPATING IN RESEARCH?


People with lived experience are often asked to participate in mental health research. Research projects may aim to increase knowledge about what affects our mental health, improve mental health services, or evaluate a new therapy.

These are goals that many of us would like to support. However, not all research is equal, and not all research projects acknowledge, value, or respect the expertise, contributions, and diversity of people with lived experience.

That’s why VMIAC has developed criteria based on lived experience engagement principles to evaluate requests to promote research participation opportunities to our members and other people with lived experience.

View or download our handy Research Participation Checklist designed to help consumers decide whether to participate in a promoted research project.

WHAT KINDS OF RESEARCH PARTICIPATION DOES VMIAC SUPPORT?

Only lived experience-led and other research projects that we identify as meeting our criteria for support are promoted by VMIAC. When we assess projects to be of a high standard, in line with consumer principles, and offering potentially substantial benefits to participants or to improving people’s lives more broadly, we will indicate this in our listings.

While we evaluate research support requests against our lived experience principles, our agreement to promote research participation opportunities to members and people with lived experience does not mean we endorse all aspects of the promoted research projects, or their findings.

We encourage people with lived experience to look at the research opportunities available and consider how comfortable you feel with both the information provided and what the researchers are asking you to do, before making your decision about participating.

EXPERTS IN OUR OWN LIVES

The expertise of people with lived experience of mental health challenges is highly valuable and needs to be central to all mental health research. Too often, lived expertise has been undervalued, under-resourced, and taken for granted by researchers and in research agenda-setting. In the current context of mental health reform in Victoria, we are working to embolden and amplify lived experience voices and leadership in how mental health research is done.

People with lived experience who are involved in research must be valued, acknowledged, and paid fairly for our work and contributions, whether as participants, advisors, or researchers. Traditional power imbalances in research practice must be acknowledged and transformed.

View or download our handy Research Participation Checklist 


CURRENT RESEARCH PARTICIPATION OPPORTUNITIES

LIVED EXPERIENCE-LED PROJECTS

With VMIAC

  • Shared Reading for Self-advocacy: 12 weeks of stories, poems, and conversation

    VMIAC is excited to partner with researchers at La Trobe University in this project designed to foster consumers’ ability to advocate for ourselves.

    Shared Reading is an immersive adventure, a space where people from all walks of life gather in small groups to listen to a story or a poem. The groups read slowly to allow space for responses to emerge and to share, discover narratives, and speaking our own truth. Shared Reading has been shown to help with depression, anxiety, and building confidence. Some call it ‘bibliotherapy’.

    The researchers are looking for participants to take part in a weekly Shared Reading group over 12 weeks as part of this project. You can choose one of three locations: Bendigo or Bundoora campus, La Trobe University, or Prahran at VMIAC.

    Get more information or sign up

    Contact Juliane Roemhild: j.roemhild@latrobe.edu.au

With external researchers

  • None Currently Available

With student researchers

  • Your Experience Matters

    Researcher and social worker, Keely Walsh, is undertaking a PhD at the University of Melbourne focused on understanding the experiences of people with psychosocial disability and a trauma history accessing and using the NDIS.

    People aged 18-65 with a current NDIS package and a history of trauma are invited to participate. Participants will be reimbursed $50.00 per hour for their time with a Mastercard gift voucher.

    To find out more, you can email Keely at kjwalsh@student.unimelb.edu.au or go to the YEM website

PROJECTS NOT LED BY LIVED EXPERIENCE

With external researchers

  • None Currently Available

With student researchers

  • None Currently Available
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